General Asylum

Music Lovers going deaf: Give me some hope

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Frihed89

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I seem to be on the losing end of otosclorosis, after two operations, and a third on the way. I am nearly deaf in one ear and my hearing is going down again fast in the other ear. Hearing aids hardly work.
I don't need medical advice. Just your inspiration and hope.
PM me. Thanks.

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Re: Music Lovers going deaf: Give me some hope - FRO 12:04:08 04/14/07 (0)
I go in Wednesday to have my Stapese replaced with a titanium one.
Hope I have better luck!
Re: Music Lovers going deaf: Give me some hope - saltyflies 09:13:04 04/14/07 (0)
My best wishes to you and tune from the Kinks -
Here�s wishing you the bluest sky,
And hoping something better comes tomorrow.
Hoping all the verses rhyme,
And the very best of choruses to
Follow all the doubt and sadness.
I know that better things are on the way.
Here�s hoping all the days ahead
Won�t be as bitter as the ones behind you.
Be an optimist instead,
And somehow happiness will find you.
Forget what happened yesterday,
I know that better things are on the way.
It�s really good to see you rocking out
And having fun,
Living like you just begun.
Accept your life and what it brings.
I hope tomorrow you�ll find better things.
I know tomorrow you�ll find better things.
Here�s wishing you the bluest sky,
And hoping something better comes tomorrow.
Hoping all the verses rhyme,
And the very best of choruses to
Follow all the drudge and sadness.
I know that better things are on the way.
I know you�ve got a lot of good things happening up ahead.
The past is gone it�s all been said.
So here�s to what the future brings,
I know tomorrow you�ll find better things.
I know tomorrow you�ll find better things.

Believe what your ears say - not hearsay.
best wishes - Green Lantern 00:21:16 04/14/07 (0)
going out to you my friend:)

"Live life as if you'll die tomorrow...
Learn life as if you'll live forever..." -Gandhi
Re: Music Lovers going deaf: Give me some hope - hartwerger 13:00:37 04/13/07 (0)
My thoughts and sympathy is with you. You've given such good advice and positive support through your many posts here on the Asylum, I just wanted to know how much you are valued. You have a lot of friends here, as is obvious from all the replies, and are not alone in your struggle. Truly wish you the best.
My thoughts are with you - Quint 04:40:35 04/13/07 (0)
I've been a stutterer for close to 40 years, and I deinitely know what it feels like to lose (or, in my case, have greatly diminished) an essential faculty. But, as other posters have stated, there's a LOT of very important research being conducted on hearing loss. In a weird way, and I don't mean to slight what's happening to you, this is probably the best time for it to happen. You have a number of medical avenues open to you. It just takes a little bit of research. At any rate, you have all our support. You're an important member of this forum, and we want to keep you around for a good long while! :) My blessings are with you.
Thanks everyone - Frihed89 23:44:37 04/12/07 (0)
I needed that.
Re: Music Lovers going deaf: Give me some hope - cdb 21:47:16 04/12/07 (0)
Interacting w/ my 87 yr old mother and her hearing ability, I realize what awaits us all down the road.
My HF ability is starting to roll-off. Make that *is rolled-off. My interest in my music of 30-40 years ago is starting to wane. At the same time, the system has never been better, and the recent addition of of the audience adept 1 plug conditioner on the power amp end is mightily impressive.
What the first thing to go is debatable... but there are several things to go that are guaranteed. Sadly, hearing is one of them - though you'll never see a paid Reviewer admit that.
We don't have the hearing of a 23 yr old, and we don't have the 'other thing' of a 23 yr old. Life is finite, and tough, and not perfect; plan and accept... Think of all the wonderful contributions you've made here, and the decades of good stuff you've listened to. There are blessings to living in the USA. Read in US News that only 10% of Afghanis' have 'experienced' electricity.
Music is, of course, nice, but there are thousands of books to be read, thousands of photographs for you to take, miles of trails to be hiked.
Memories are forever, and it's hard to erase musical memories. Name me 10 Shirelles tunes, and the playback starts in my head. We never forget our first lover, nor our last. So, we're all with you and behind you, and face the same fate. Perhaps time to focus on other enjoyments...
Re: Read this book.... - Matts_ 21:03:27 04/12/07 (0)
called "An Equal Music" by Vikram Seth for inspiration. Also, try to listen more to pieces you know well and love, since I've heard your brain will fill in most of the parts from memory, even if you can only actually hear an occasional hint of a few frequencies. Good luck with everything- any loss is difficult.
I know what to do. - rrikola@hotmail.com 18:47:43 04/12/07 (0)
You can still hear. As long as you can hear there is still hope. I have a friend who was in a fire and badly burned years ago. He is about 56 years old. He is a fine piano player, plays in a band and is a public defender in the same office as I am. As a result of being in his home and having a common interest in music I was able to get him to "upgrade" to a vintage marantz receiver.
I noticed that every time I was at his house he had the tone controls cranked up. I knew from working with him that he couldn't hear worth a dam and keep telling him that he needs a hearing aid just to pull his chain. One day one of the bailiffs offered me an old semi vintage "mid fi" graphic eq. I didn�t want to say �no, it�s a peace of shit� so I took it just to be polite. As soon as I got back to the office I dumped it off in my friends� office without explanation. He took it home and loved it. I adjusted the curve for him just so it would be within the extremes of reason.
GET YOUR SELF A GOOD PROFESSIONAL EQUILAIER AND COMPONSATE FOR YOUR HEARING LOSS. ADJUST IF FOR YOU. Good luck Bob
One last ditch try - AmazingBass 18:22:38 04/12/07 (1)
I see you don't want medical advice, but the House Ear Clinic in Los Angeles, USA is the best ear clinic in the world. They saved my father's hearing.
- Thank you - Frihed89 23:42:24 04/12/07 (0)
  I have also contacted causse clinic in France at my doctors suggestion. I live in Europe and once the operation is performed you can't fly for a month.
As a drummer... - mpathus 18:14:34 04/12/07 (0)
...I feel pulses through the floor and bones, even when using hearing protection.
Ever been to a drum circle?
A drum circle may not be everyone's cup of tea, but it might be a way to touch an aspect of music and allow one to vicerally experience it. Accute hearing is a plus, but not a necessity as visual cues abound, and the hands are involved.

It can be healing and good for you in other ways as well.
The music waits for you.
Best health!
Best wishes and... - Enophile 16:29:59 04/12/07 (1)
Hi, wishing you the best, and no advice intended other than to mention that I recall reading a terrific article by an audiophile who lost his hearing and has been on an inspiring journey back to audiophilia after cochlear implants were installed.
Toward the end of the article, he mentions the thrill of once again being able to distinguish between oboes and French horns, IIRC.
The technology is so tantalizingly close.
Hoping your surgery goes perfectly, but keep up the search for replacement!
Glass raised in your honor tomight.
- I read the same story - in search of Bolero - Frihed89 23:43:51 04/12/07 (0)
  It was inspiring and made me see how fortunate I was.
Re: Music Lovers going deaf: Give me some hope - morricab 16:02:50 04/12/07 (0)
I Sincerely hope the best for you. Perhaps medical technology will give you something to look forward to in the near future.
Re: Music Lovers going deaf: Give me some hope - Frihed89 15:29:26 04/12/07 (0)
Thanks all. Hopefully, the next operation will be a winner. I have bought a lot of headphone technology recently. Nice equipment, too. But I need more gain for now. I have achieved a partial solution by hooking up a really nice tube preamp/headphone amp to a SS headphobe amp. I use the tube preamp to get the sound I love and boost the gain with the SS head amp. My friends at Blue Circle Audio are working on fixing me up with a SS headphone amp that can operate as a stand-alone as a high gain integrated head amp, or as a power headphone amp when connected to another preamp, and the unit will also have a monitor to pass the output signal from the SS head amp to a regular amp hooked up to speakers. I have found that listening to speakers and open headphones at the same time greatly increases what i can hear along with the beauty of what i can hear. But we are talking 40dB of gain into my right ear!
There's a wonderful movie about a DJ rock musician who goes deaf and triumphs over it, without regaining his hearing I forget the name. I have recently bought a really good Concept 2 rowing machine and am working on joining the elite class of plus 60-year olds. I need to get my 30 minute calorie burn into the mid-800s to do that. I am at about 750, now, after a month.
And you don't need to hear to look at beuaitful danish girls!
But I had to give up playing lacrosse finally at 64. I still coach.
I have a lot to be grateful for.
Re: Music Lovers going deaf: Give me some hope - Sherlock 13:52:52 04/12/07 (0)
I sincerely hope things go better for you. I am sure that _everyone_ in the Asylum hopes for the best.
From what I read there is much research... - BJordan 13:17:37 04/12/07 (0)
going on for the restoration of hearing loss. Hang in there maybe something will happen in the near future to help you. Try to find other things you enjoy in life that don't rely on your hearing. Best wishes.
Well.... - damage k 12:45:02 04/12/07 (0)
I don't really know what to say to that. It was one of my fears a few years back but luckily for me never happened. But I crammed as much music into my memory as I could... I hoped that if the worst happened then I would have something to draw upon.
I got the idea from somebody else who had gone deaf, to learn to read music. It's not going to be the same but you can sort of get the hang of seeing the ebb and flow of the music. It sort of works....
Hope it doesn't all go so bad as you think... my fingers are crossed.
Best wishes,
K

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